Post by poetsunshine on Jul 27, 2010 18:48:24 GMT -6
Hi Everyone,
It's been awhile, so I thought I'd give everyone an update. Basically, mom is out of any research study. She's just not healthy and stable enough. She has good days and bad days. Todd threw Becky a 40th party and mom was able to go...which REALLY helped her spirits! Mom is now back under her oncolgist care..from Beaumont, which is good. Back a few weeks ago when things were really bad ie. trying to get a hold of her Karmanos dr, jumping through hoop after hoop....out of the clear blue sky, Dr. J called. She had been on his mind and he just wanted to hear how she was doing. They had a very nice conversation in which mom expressed her struggles with Karmanos and the Dr. there. He was very upset and wanted mom to stay in touch. This was such a "God moment". Mom was struggling so bad feeling that she had just been left by both hospitals/Dr.'s and that everyone wanted to "wash their hands" of her. He called at such the right moment! So...once mom got the word that she wasn't going to be in any study, she met with Dr. J. He was VERY compassionate and has agreed to take mom back and is trying to help her gain weight and manage her eating and blockage issues. If mom is to get sick, she will go to Beaumont....Praise God!! Mom really liked the nurses at Karmanos, but every decision had to go through a long chain of people to reach her clinical research Dr.. It just got to be a VERY big pain in the rear...which is NOT what you need when you are sick and needing help...NOW!
Everyday still is a struggle as to what to eat, keeping things "flowing" and what meds to take to make sure that she doesn't get blocked. It's taking a toll emotionally on her as well. She really, really appreciates the phone calls and notes that many of you have sent. Thank you, thank you, thank you!!! It's the little things in life
I hope you all are having a WONDERFUL summer! Enjoy the sunshine!
Love,
Beth
It's been awhile, so I thought I'd give everyone an update. Basically, mom is out of any research study. She's just not healthy and stable enough. She has good days and bad days. Todd threw Becky a 40th party and mom was able to go...which REALLY helped her spirits! Mom is now back under her oncolgist care..from Beaumont, which is good. Back a few weeks ago when things were really bad ie. trying to get a hold of her Karmanos dr, jumping through hoop after hoop....out of the clear blue sky, Dr. J called. She had been on his mind and he just wanted to hear how she was doing. They had a very nice conversation in which mom expressed her struggles with Karmanos and the Dr. there. He was very upset and wanted mom to stay in touch. This was such a "God moment". Mom was struggling so bad feeling that she had just been left by both hospitals/Dr.'s and that everyone wanted to "wash their hands" of her. He called at such the right moment! So...once mom got the word that she wasn't going to be in any study, she met with Dr. J. He was VERY compassionate and has agreed to take mom back and is trying to help her gain weight and manage her eating and blockage issues. If mom is to get sick, she will go to Beaumont....Praise God!! Mom really liked the nurses at Karmanos, but every decision had to go through a long chain of people to reach her clinical research Dr.. It just got to be a VERY big pain in the rear...which is NOT what you need when you are sick and needing help...NOW!
Everyday still is a struggle as to what to eat, keeping things "flowing" and what meds to take to make sure that she doesn't get blocked. It's taking a toll emotionally on her as well. She really, really appreciates the phone calls and notes that many of you have sent. Thank you, thank you, thank you!!! It's the little things in life
I hope you all are having a WONDERFUL summer! Enjoy the sunshine!
Love,
Beth
